Archive for the ‘News & Updates’ Category

FUNDRAISER-Saturday July 31, 8am - 4 pm

Turning Point Church, 1625 Myott Ave, Rockford, is holding its second annual fundraiser this Saturday, July 31, 8am-4pm . All of this years proceeds will go into a fund to support Matthew’s ongoing therapies. Your donations of slightly used items are appreciated and can be dropped off on Friday, July 30, @ 4:30 pm at the above address. Monetary donations are also accepted, and will be tax deductible, if checks are made out to : Special Friends Foundation , care of Matthew Lapp.  Hope to see you there. Thanks for your support.

 

 

 

 

HAPPY NEW YEAR 2010!


Facebook!

I had been thinking about on how to get more prayer support for Matthew’s speech and was inspired by someone on Facebook. So I formed a group called “Matthew’s Hope” on facebook myself.  Anyone willing to pray for Matthew’s speech or for Matthew in general can join this group. All we are asking for, are your continued prayers. There are no strings attached. So please feel free to join and spread the word to all of your facebook friends. I really believe in the power of prayer!  Hope you will check us out!   “..hope does not disappoint..”   Romans 5:5 

 

 

NEWEST ACHIEVEMENT!

Matthew reached another milestone.                 

After 9 long years and many many diapers later, there are no more diapers for Matthew during the day. I guess you can imagine how excited everyone is around here. Matthew is definitely a big boy now.                           

Matthew, you have all the earthly support you could ask for. But more importantly, you have Jesus Christ in your life and therefore, you are BLESSED.

Watch Matthew play Buddy Baseball!

Click on the below link to see Matthew play Buddy Baseball. There is a short commercial before the actual clip starts.   Matthew we are so proud of you. Enjoy!!!!!!!!!!!!!

 BUDDY BASEBALL

 

RRSTAR ARTICLE - BUDDY BASEBALL

RRSTAR.COM
Posted Jun 03, 2009 @ 11:41 PM
Last update Jun 04, 2009 @ 07:54 AM

ROCKFORD —

Noah Hinde sat firmly and upright in his wheelchair with bat in hand waiting for the pitch to be delivered.

The 9-year-old’s body may be weakened by cerebral palsy, but in Wednesday’s baseball game with buddy Bryanna Powell by his side, Noah smacked the ball down the first base line.

Powell ran ahead to first, as Noah rolled himself toward it.

“Batting and hitting the ball is fun,” said Noah, who attends McNair Elementary School in Winnebago.

And throughout the stands and on the field, dozens of other children and young adults with disabilities were having fun as they took part in Buddy Baseball, which made its season debut at Guilford High School.

Buddy Baseball is open to area youths ages 7-21 who have special needs. They are paired with peers to experience the game of baseball. The program is in partnership with the Rockford Park District.

“This means everything to him,” said Noah’s mother, Cindy. “He’s been looking forward to this for a long time. For his birthday, he got a helmet, bat and gloves.”

As many parents cheered on their kids from the stands, buddies assisted the players with hitting, running and fielding.

“It’s a great way to help others,” said 14-year-old George St. John, who served as buddy to 10-year-old Marc Ramos, who has Prader-Willi syndrome, a rare eating and behavior disorder. “He and I both like to hit, so it’s been a lot of fun.”

George said he hopes to develop a bond with Marc as the season goes on. Games will be held every Wednesday until July 1.

“To pair them up guarantees success,” said Sheri White, who is spearheading the Buddy Baseball program. “Part of the program is about friendships and some of our special needs kids are isolated because they are in a mainstream school, so they don’t have the connection to their peers. This program is about matching them up with a peer similar in age hopefully the same gender, and hopefully relationships will happen.”

Matthew Lapp, 9, of Machesney Park has Rubinstein-Taybi syndrome, which is characterized by specific physical features and developmental disabilities.

He threw out the first pitch at the game with his buddy, Lou Gilbert, 13, behind him on the mound.

Matthew has limited speech because of his disease, but Lou said they find ways to communicate.

“When I ask him if he’s ready to hit, he will give me a thumbs-up or shake his head for yes. It’s fun to see the smile on his face.” Lou said.

Staff writer Brenda Young can be reached at 815-987-1388 or byoung@rrstar.com.

News Paper Article “Get to Know Me”

Matthew Lapp




PHOTO PROVIDED
Matthew Lapp

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RRSTAR.COM
Posted May 28, 2009 @ 12:33 AM
Last update May 28, 2009 @ 01:06 AM

Who is he? Matthew Lapp, 8, lives with his mom, Kiki; dad, Ted; and 4-year-old sister, Peyton, in Rockford. Matthew enjoys videotaping almost everything he does so he can watch it on his computer. He was born with a rare syndrome called Rubinstein-Taybi syndrome, which is characterized by specific physical features and developmental disabilities. Readers can find more information about him at his Web site, matthewshope.com.

Where do you go to school?
Loves Park Elementary School. I attend the life skills classes there.

Do you belong to any clubs/groups/boards?
I do therapeutic horseback riding at the Bergmann Centre. And I am just starting to play Buddy Baseball. My favorite thing to do is spend time in my grandma’s hot tub; also I love jumping on my big trampoline. To communicate I use sign language and an augmentative communication device.

What is your ideal way to spend a Friday night in Rock River Valley? I love going to Chuck E. Cheese or hanging out with all my cousins.

What is up next for you that readers should know about? I am going to throw out the first pitch at our inaugural season of Buddy Baseball on June 3 at Guilford High School. I was the first one to get my registration in for this new and really cool baseball program, so I got picked for the honor. Lou Gilbert will be my buddy.

What is the last book you read?
“Green Eggs and Ham,” by Dr. Seuss.

What is your favorite movie? My favorite movie is “Cars,” the Disney Pixar movie.

What are five items you cannot live without?
Gum, ice cream, a computer, disc spinner and my gardening gloves.

What would your friends be surprised to learn about you?
That I can read really well with the Edmark reading program using my communication board. Also that I really love to dance to worship music.

What is something you have always wanted to do? Being able to communicate by talking.

What is your favorite saying or expression?
My favorite expression is “thumbs up.”

Who are you role models?
My mom and dad and my uncle “Pastor Steve.”

What are you watching on TV?
“Super Why!” It’s an animated television show with an interactive Web site that helps children ages 3-6 learn reading skills, the alphabet and rhyming.

What is your favorite subject in school?
My favorite subject is art.

What do you want to be when you grow up?
I want to be a firefighter.

Compiled by Katie Backman. Have a suggestion for Get to Know Me? A story idea? Call 815-987-1369 or e-mail kbackman@rrstar.com.

Baseball!

Well,  Matthew is going to play Buddy baseball. I met this wonderful woman by the name of Sheri that came up with this great idea to get special needs kids playing ball.  In order for that to work, she had lots of able kids volunteer their time to become a buddy to one of our kids. They were matched up and the buddies will now be able to assist our kids with the help they need to play organized ball. Matthew was matched up with Lou, a 13 year old boy,  who is totally awesome and is already so attuned to Matthew. We met him at the match up day on Saturday. He took to Matthew right away and even picked up on his signing already. I know this will be so good for Matthew. But what I really like about the program is that it will teach these kids compassion and that not everyone is the same. Therefore, these kids will grow up nonjudgemental and that I thank their parents for.

Matthew will get to throw the honory pitch at the first game, since he was first to sign up for the league. 

Also, he will be featured in our local newspaper, the Rockford Register Star, in the  “Get to Know Me” section. Isn’t that awesome.  Matthew will be our own little celebrity. Who would have known.

Well, that is all for today. Hope you continue to read up on Matthew’s progress. Pictures will follow.

The weather around here is getting nicer and Matthew is waiting anxiously for Opa to get the water changed in the hot tub. Since the tub sits out on the deck we had told him during the winter that  once it got nicer out he would be able to use it again. So now whenever we say “oh it is pretty nice out today”  and Matthew hears us he will ask to go in the hot tub. It is just so cute how he remembers everything.

On another note, horseback riding is starting back up on Monday, and Matthew is really looking forward to it too.

Aunt Bianca almost got run over today while sitting in the driveway watching the kids ride their bikes. Matthew was coming racing down the road on his really cool low rider bike,  but didn’t plan on stopping while turning into the driveway. So Oma had to play Hero and save aunt Bianca from getting run over. Too bad we didn’t get that one on video. Matthew thought it was funny and was laughing…..! Of course we had a talk with him, but every time after that he would pass Bianca and had this big grin on his face. He is such a bundle of energy. We just love you to pieces Matthew! Who would have ever thought years ago that he would be riding a bike. Thank you Lord!

Terrible flu!

Matthew has been missing so much school this winter it isn’t even funny.

His last bout with the type B flu strain just about landed him in the hospital. But thanks to our wonderful pulmonologist we were able to cure him at home. It took some antibiotics and a very heavy dose of steroids, but he made it. It looks like he is going back to school tomorrow only to be off for spring break next week. Hopefully now mom and dad can get some much needed sleep again. Kiki and Matthew slept in the recliner for a few days to help prevent the coughing attacks at night. 

Oma and Opa will have the kids spend the night with them on Saturday so mom and dad can have some adult time again for a change.  Matthew and Peyton sure do love their Oma and Opa, which makes it so much easier.

Well thanks to everyone that was praying for Matthew to get through this once again. Your prayers were answered. Have a great Spring you guys!

 

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